A party in which there will be activities for children, dinner and charity bingo.
This year the income obtained by the event will go for IKER, a child who on 21 November will be two years old.
Suffers a disease rare called syndrome of Rothmund Thomson that is a genodermatosis that is presents with an Erythema facial characteristic associated with stature low due to a delay in the growth pre- and postnatal, hair little, eyebrows and eyelashes scarce or absent, falls youth, anomalies skeletal, defects of the shaft radial, aging premature and predisposition to certain cancers. The prevalence is unknown, but so far reported around 300 cases.
You need to travel to Houston, accompanied by your family where you are studying his illness, because today is not yet known cure.
The party solidarity "support to IKER"-AMQM will be the day 21 / 11 / 2015 from them 18:30 with activities for children, and a stand information about the disease. From 21:30 o'clock we will celebrate a dinner, in our casal in the street Lauri Volpi, 24. Adult menu will consist of sandwich meat with tomato and drink, €5 and for children's snack of potato omelette's and drink €3. From here we want to thank Catering pantry that is going to take care of dinner free of charge.
Dinner reservation will be made by the sale of tickets early Wednesday from 20:30 h to 22:00 and Friday from 20:30 h to 23:30 h in our Casal, in charge of the delegation of Social work.
Or through contact by any network social.
From here we call because it is important to count with a great support from neighbors, friends, falleros, no Falla and public in general, for thus to contribute our bit to this family.
-Facebook: Fails Naquera Lauri Volpi
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